rare diseases • Chronic Illness Blog: Life with CVID

Travel

Traveling with a Chronic Illness: Don’t let it hold you back!

February 16, 2023 / 1 Comment

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Aubrey

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A must-visit winery in Kefalonia, Greece
October 12, 2023

Visiting Strasbourg, France
February 8, 2023

3 Recommendations for Palm Springs, CA
April 12, 2023
Chronic Illness

Telling People About Your Chronic Illness: 3 Ways to Feel Seen and Known

January 19, 2023 / 5 Comments

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Aubrey

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Life with an Invisible Illness: Why do I feel so guilty about taking time for myself?
March 28, 2023

Battling chronic illness: Dealing with fear and uncertainty
March 16, 2023

Life with primary immunodeficiency: How to stop yourself from spiraling when you feel symptoms coming on
December 22, 2023
Chronic Illness

Navigating depression and anxiety after receiving a difficult diagnosis

December 19, 2022 / 0 Comments

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Aubrey

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Mixed feelings about life with chronic illness: It’s okay to be happy and sad at the same time
September 13, 2024

Anxiety about medical procedures: The fear of bad results
June 6, 2023

What is Granulomatous and Lymphocytic Interstitial Lung Disease (GLILD)? My journey with CVID and GLILD
June 13, 2023
Chronic Illness

When Chronic Illness is a Full Time Job

November 30, 2022 / 2 Comments

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Aubrey

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Creating a Sanctuary
August 6, 2022

Telling your chronic illness story: An intimidating yet rewarding experience
March 15, 2024

When chronic illness steals your peace and happiness: How do I get my joy back?
October 3, 2023
Common Variable Immunodeficiency

What are the Symptoms of Common Variable Immunodeficiency (CVID)?

November 18, 2022 / 0 Comments

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Aubrey

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Living with CVID: How chronic illness changed my outlook on life.
April 11, 2023

SCIg Series: sometimes I really don’t want to do it.
March 31, 2023

What is immunoglobulin replacement therapy (Ig)?: My experience with starting Ig
November 6, 2023
Common Variable Immunodeficiency

Mystery Illness???

August 1, 2022 / 0 Comments

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Aubrey

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Plasma Treatment: The Rundown
August 4, 2022

CVID Symptoms: How do I live a “normal” life?
March 21, 2023

National Primary Immunodeficiency Month: 3 Ways to Celebrate Your Strength
April 25, 2023
Common Variable Immunodeficiency

“Invisible” – a short film by me!

August 1, 2022 / 0 Comments

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Aubrey

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Reflecting on four years with Common Variable Immunodeficiency (CVID)
August 23, 2023

Guest Post: Kendal Phinney’s CVID Story
January 25, 2024

What are immunoglobulins? How they relate to CVID
July 2, 2023