Recent Posts
Guest Post: Maia’s CVID Story
Hi! I’m Maia. You might be wondering where my journey with CVID began, so here is the first time I’m …
Rare Disease Day 2025: Navigating life with Common Variable Immunodeficiency for 6 years
Raising awareness for rare diseasesHow CVID changed my lifeA message to those that are struggling A couple of years ago, …
Worrying never changes the outcome
Why is worrying so harmful?How do I alleviate worry?Life is a journey, there will be ups and downs Everyone has …
International Plasma Awareness Week 2024: The importance of raising awareness for plasma donation
What is plasma?How do I donate plasma?We appreciate plasma donors! October 7th is the first day of International Plasma Awareness …
Mixed feelings about life with chronic illness: It’s okay to be happy and sad at the same time
Chronic illness often comes with constant surprisesI've learned to treasure the good daysIt's okay to have a feeling of sadness …
Getting out of a funk: How to reinvent yourself and start loving life again
1. I analyzed my life and discovered the reasons for my stress and anxiety. 2. Treat yourself to some new …
Finding hope after an upsetting diagnosis
The beginning was the hardestTake a breath. Focus on today.You can control your mindset and your actions. Along my journey …
Healthy Hair Journey: How I continue to maintain long, full hair
So – how did I do it and how do I continue to maintain healthy hair?1. I stopped washing my …
How to overcome the fear of judgement and stop doubting yourself
Trying something newWhat will they think of me?Don't get in your own wayDon't wait. Do it today.Don't underestimate yourself. Trying …
What am I doing with my life? Finding purpose despite chronic illness.
Don't put pressure on yourself to have it all figured out.Find something that makes you feel excited and inspired. Focus …
World PI Week 2024: Spreading Awareness For Primary Immunodeficiency
April 22-28Listen to my podcast feature on The Trusted Friend by Lisa HeltonThis week is an opportunity to celebrate your …
Telling your chronic illness story: An intimidating yet rewarding experience
Life with chronic illness is complicated and can often be difficult to explain to othersThere is power in taking ownership …
A little health update: Dealing with mysterious low white blood cell counts
Facing a new issueRe-living a traumatic experienceAwaiting answersAccepting the reality of lifelong illness Having a chronic illness can be complicated …
Going through the motions: It’s okay to have seasons of sadness
henever I am feeling down, I constantly brainstorm ways to fix it. Negative emotions can be extremely uncomfortable and I …
3 Beauty Products That Help Me Feel Like My Best Self
Living with chronic illness can be mentally draining and often takes a toll on my confidence. Something that makes me …
Guest Post: Kendal Phinney’s CVID Story
This guest post is written by Kendal Phinney. She provides insight into having CVID as a college student.
How to cope with juggling chronic illness and a busy schedule
Don't make too many commitmentsHave your favorite medicine and supplements handyTake a day off when you are feeling burnt outRemove …
Affordable self-care products for a relaxing and rejuvenating night in
Spa HeadbandsDr. Teal's Sugar Shea ScrubPacifica's Glow Baby Booster SerumWavy Chic Micro-current Facial DeviceEmbryolisse Lait-Crème Concentré Daily Face CreamBe kind …
How finding hobbies improved my mental health as a young adult with chronic illness
I started reading againI make my own coffee and matcha drinks at home I found creative ways to be more …
Life with primary immunodeficiency: How to stop yourself from spiraling when you feel symptoms coming on
Having primary immunodeficiency hinders the immune system, which means those with PI get sick more often and sometimes in a …
