rare diseases • Chronic Illness Blog: Life with CVID

Chronic Illness

When you’re sick and tired of being sick and tired

August 28, 2023 / 9 Comments

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Aubrey

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May 4, 2023
Common Variable Immunodeficiency

Reflecting on four years with Common Variable Immunodeficiency (CVID)

August 23, 2023 / 2 Comments

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CVID Symptoms: How do I live a “normal” life?
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World PI Week 2024: Spreading Awareness For Primary Immunodeficiency
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Chronic Illness

The fear of needles and veins: does it ever really go away?

August 11, 2023 / 5 Comments

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Battling chronic illness: Dealing with fear and uncertainty
March 16, 2023

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Chronic Illness

Chronic Illness and Health Insurance: An eye opening experience

July 20, 2023 / 1 Comment

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Navigating depression and anxiety after receiving a difficult diagnosis
December 19, 2022

The importance of community for those with chronic illness
December 19, 2023
Common Variable Immunodeficiency

What are immunoglobulins? How they relate to CVID

July 2, 2023 / 2 Comments

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Aubrey

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SCIg Series: sometimes I really don’t want to do it.
March 31, 2023

“Invisible” – a short film by me!
August 1, 2022

Guest Post: Kendal Phinney’s CVID Story
January 25, 2024
Chronic Illness

Dealing with “forever:” The thought of doing treatment for the rest of my life

June 25, 2023 / 11 Comments

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Aubrey

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What is Primary Immunodeficiency? 3 things I’ve learned about PI
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Telling your chronic illness story: An intimidating yet rewarding experience
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Chronic Illness

Listen to my guest feature: Real Talk Real Women by Gemma Serenity Gorokhoff

June 20, 2023 / 1 Comment

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How finding hobbies improved my mental health as a young adult with chronic illness
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Creating a Sanctuary
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Chronic Illness

What is Granulomatous and Lymphocytic Interstitial Lung Disease (GLILD)? My journey with CVID and GLILD

June 13, 2023 / 4 Comments

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Finding hope after an upsetting diagnosis
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The importance of hydration for those with chronic illness (and everyone!)
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Chronic Illness

Anxiety about medical procedures: The fear of bad results

June 6, 2023 / 5 Comments

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Common Variable Immunodeficiency

Recently diagnosed with Common Variable Immunodeficiency (CVID)? Here’s my advice for the beginning of the journey

May 30, 2023 / 1 Comment

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Living with CVID: How chronic illness changed my outlook on life.
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International Plasma Awareness Week 2024: The importance of raising awareness for plasma donation
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National Primary Immunodeficiency Month: 3 Ways to Celebrate Your Strength
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