rare diseases • Chronic Illness Blog: Life with CVID

Common Variable Immunodeficiency

Guest Post: Maia’s CVID Story

March 12, 2025 / 0 Comments

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Maia Marks

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Common Variable Immunodeficiency

Rare Disease Day 2025: Navigating life with Common Variable Immunodeficiency for 6 years

February 26, 2025 / 0 Comments

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World PI Week 2024: Spreading Awareness For Primary Immunodeficiency
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IDF’s Walk for Primary Immunodeficiency – how to get involved!
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Chronic Illness

Finding hope after an upsetting diagnosis

June 7, 2024 / 0 Comments

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Life with chronic illness: How to feel confident in your own skin
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Mixed feelings about life with chronic illness: It’s okay to be happy and sad at the same time
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Swollen Lymph Nodes – cancer, or something else??
August 17, 2022
Common Variable Immunodeficiency

World PI Week 2024: Spreading Awareness For Primary Immunodeficiency

April 17, 2024 / 0 Comments

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Guest Post: Kendal Phinney’s CVID Story
January 25, 2024

Are Plasma Treatments Painful?
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Guest Post: Maia’s CVID Story
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Chronic Illness

Telling your chronic illness story: An intimidating yet rewarding experience

March 15, 2024 / 0 Comments

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What is Granulomatous and Lymphocytic Interstitial Lung Disease (GLILD)? My journey with CVID and GLILD
June 13, 2023

What is an invisible illness? Navigating conditions that can’t be seen
October 10, 2023

Anxiety about medical procedures: The fear of bad results
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Chronic Illness

A little health update: Dealing with mysterious low white blood cell counts

February 26, 2024 / 1 Comment

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Suffering from constant sinus infections? Here are 2 things that help alleviate my sinusitis symptoms.
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Battling chronic illness: Dealing with fear and uncertainty
March 16, 2023

Mixed feelings about life with chronic illness: It’s okay to be happy and sad at the same time
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Chronic Illness

Life with primary immunodeficiency: How to stop yourself from spiraling when you feel symptoms coming on

December 22, 2023 / 0 Comments

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What is an invisible illness? Navigating conditions that can’t be seen
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Dating with a chronic illness: How and when do I tell someone about my disease?
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The importance of community for those with chronic illness
December 19, 2023
Common Variable Immunodeficiency

What is immunoglobulin replacement therapy (Ig)?: My experience with starting Ig

November 6, 2023 / 1 Comment

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World PI Week 2024: Spreading Awareness For Primary Immunodeficiency
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Reflecting on four years with Common Variable Immunodeficiency (CVID)
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Chronic Illness

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October 10, 2023 / 1 Comment

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Life with an Invisible Illness: Why do I feel so guilty about taking time for myself?
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Common Variable Immunodeficiency

IDF’s Walk for Primary Immunodeficiency – how to get involved!

September 11, 2023 / 2 Comments

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Reflecting on four years with Common Variable Immunodeficiency (CVID)
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Living with CVID: How chronic illness changed my outlook on life.
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CVID Symptoms: How do I live a “normal” life?
March 21, 2023