rare diseases • Chronic Illness Blog: Life with CVID

Chronic Illness

Finding hope after an upsetting diagnosis

June 7, 2024 / 0 Comments

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Aubrey

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How finding hobbies improved my mental health as a young adult with chronic illness
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Common Variable Immunodeficiency

World PI Week 2024: Spreading Awareness For Primary Immunodeficiency

April 17, 2024 / 0 Comments

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Saving Lives: Why it’s important to donate plasma
April 26, 2023

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Recently diagnosed with Common Variable Immunodeficiency (CVID)? Here’s my advice for the beginning of the journey
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Chronic Illness

Telling your chronic illness story: An intimidating yet rewarding experience

March 15, 2024 / 0 Comments

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Battling chronic illness: Dealing with fear and uncertainty
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What is Granulomatous and Lymphocytic Interstitial Lung Disease (GLILD)? My journey with CVID and GLILD
June 13, 2023
Chronic Illness

A little health update: Dealing with mysterious low white blood cell counts

February 26, 2024 / 1 Comment

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What is Granulomatous and Lymphocytic Interstitial Lung Disease (GLILD)? My journey with CVID and GLILD
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Navigating depression and anxiety after receiving a difficult diagnosis
December 19, 2022
Chronic Illness

Life with primary immunodeficiency: How to stop yourself from spiraling when you feel symptoms coming on

December 22, 2023 / 0 Comments

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Aubrey

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A little health update: Dealing with mysterious low white blood cell counts
February 26, 2024

The importance of community for those with chronic illness
December 19, 2023

After experiencing extreme hair loss at 22, here’s how I grew my hair back.
December 6, 2022
Common Variable Immunodeficiency

What is immunoglobulin replacement therapy (Ig)?: My experience with starting Ig

November 6, 2023 / 1 Comment

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Saving Lives: Why it’s important to donate plasma
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SCIg Series: sometimes I really don’t want to do it.
March 31, 2023

CVID Symptoms: How do I live a “normal” life?
March 21, 2023
Chronic Illness

What is an invisible illness? Navigating conditions that can’t be seen

October 10, 2023 / 1 Comment

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March 16, 2023

Rare Disease Day 2023: raising awareness for over 6,000 rare diseases
March 1, 2023
Common Variable Immunodeficiency

IDF’s Walk for Primary Immunodeficiency – how to get involved!

September 11, 2023 / 2 Comments

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Aubrey

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Recently diagnosed with Common Variable Immunodeficiency (CVID)? Here’s my advice for the beginning of the journey
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Chronic Illness

When you’re sick and tired of being sick and tired

August 28, 2023 / 9 Comments

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Dating with a chronic illness: How and when do I tell someone about my disease?
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Chronic Illness and Health Insurance: An eye opening experience
July 20, 2023
Common Variable Immunodeficiency

Reflecting on four years with Common Variable Immunodeficiency (CVID)

August 23, 2023 / 2 Comments

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My Experience with Evusheld
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