rare diseases • Chronic Illness Blog: Life with CVID

Common Variable Immunodeficiency

Guest Post: Maia’s CVID Story

March 12, 2025 / 0 Comments

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Maia Marks

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Common Variable Immunodeficiency

Rare Disease Day 2025: Navigating life with Common Variable Immunodeficiency for 6 years

February 26, 2025 / 0 Comments

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Recently diagnosed with Common Variable Immunodeficiency (CVID)? Here’s my advice for the beginning of the journey
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Chronic Illness

Finding hope after an upsetting diagnosis

June 7, 2024 / 0 Comments

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Mixed feelings about life with chronic illness: It’s okay to be happy and sad at the same time
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Rare Disease Day 2023: raising awareness for over 6,000 rare diseases
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Common Variable Immunodeficiency

World PI Week 2024: Spreading Awareness For Primary Immunodeficiency

April 17, 2024 / 0 Comments

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“Invisible” – a short film by me!
August 1, 2022

Living with CVID: how primary immunodeficiency can change your life
February 28, 2023

Guest Post: Kendal Phinney’s CVID Story
January 25, 2024
Chronic Illness

Telling your chronic illness story: An intimidating yet rewarding experience

March 15, 2024 / 0 Comments

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Life with an Invisible Illness: Why do I feel so guilty about taking time for myself?
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How to cope with juggling chronic illness and a busy schedule
January 17, 2024

Anxiety about medical procedures: The fear of bad results
June 6, 2023
Chronic Illness

A little health update: Dealing with mysterious low white blood cell counts

February 26, 2024 / 1 Comment

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Chronic Illness and Health Insurance: An eye opening experience
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What is Granulomatous and Lymphocytic Interstitial Lung Disease (GLILD)? My journey with CVID and GLILD
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What is an invisible illness? Navigating conditions that can’t be seen
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Chronic Illness

Life with primary immunodeficiency: How to stop yourself from spiraling when you feel symptoms coming on

December 22, 2023 / 0 Comments

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Aubrey

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Creating a Sanctuary
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September 13, 2024
Common Variable Immunodeficiency

What is immunoglobulin replacement therapy (Ig)?: My experience with starting Ig

November 6, 2023 / 1 Comment

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SCIg Series: sometimes I really don’t want to do it.
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Chronic Illness

What is an invisible illness? Navigating conditions that can’t be seen

October 10, 2023 / 1 Comment

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Listen to my guest feature: Real Talk Real Women by Gemma Serenity Gorokhoff
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The fear of needles and veins: does it ever really go away?
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Common Variable Immunodeficiency

IDF’s Walk for Primary Immunodeficiency – how to get involved!

September 11, 2023 / 2 Comments

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Living with CVID: how primary immunodeficiency can change your life
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