rare diseases • Chronic Illness Blog: Life with CVID

Common Variable Immunodeficiency

Guest Post: Maia’s CVID Story

March 12, 2025 / 0 Comments

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Maia Marks

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SCIg Series: sometimes I really don’t want to do it.
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SCIg Series: Navigating anxiety about infusions
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IDF’s Walk for Primary Immunodeficiency – how to get involved!
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Common Variable Immunodeficiency

Rare Disease Day 2025: Navigating life with Common Variable Immunodeficiency for 6 years

February 26, 2025 / 0 Comments

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Aubrey

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World PI Week 2024: Spreading Awareness For Primary Immunodeficiency
April 17, 2024

National Primary Immunodeficiency Month: 3 Ways to Celebrate Your Strength
April 25, 2023

Are Plasma Treatments Painful?
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Chronic Illness

Finding hope after an upsetting diagnosis

June 7, 2024 / 0 Comments

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Aubrey

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How finding hobbies improved my mental health as a young adult with chronic illness
January 3, 2024

Navigating depression and anxiety after receiving a difficult diagnosis
December 19, 2022

Life with chronic illness: How to feel confident in your own skin
November 1, 2023
Common Variable Immunodeficiency

World PI Week 2024: Spreading Awareness For Primary Immunodeficiency

April 17, 2024 / 0 Comments

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Aubrey

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Recently diagnosed with Common Variable Immunodeficiency (CVID)? Here’s my advice for the beginning of the journey
May 30, 2023

SCIg Series: sometimes I really don’t want to do it.
March 31, 2023

Living with CVID: How chronic illness changed my outlook on life.
April 11, 2023
Chronic Illness

Telling your chronic illness story: An intimidating yet rewarding experience

March 15, 2024 / 0 Comments

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Aubrey

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Creating a Sanctuary
August 6, 2022

Dealing with “forever:” The thought of doing treatment for the rest of my life
June 25, 2023

Finding hope after an upsetting diagnosis
June 7, 2024
Chronic Illness

A little health update: Dealing with mysterious low white blood cell counts

February 26, 2024 / 1 Comment

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Aubrey

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Dating with a chronic illness: How and when do I tell someone about my disease?
May 2, 2023

Navigating depression and anxiety after receiving a difficult diagnosis
December 19, 2022

Listen to my guest feature: Real Talk Real Women by Gemma Serenity Gorokhoff
June 20, 2023
Chronic Illness

Life with primary immunodeficiency: How to stop yourself from spiraling when you feel symptoms coming on

December 22, 2023 / 0 Comments

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Aubrey

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Rare Disease Day 2023: raising awareness for over 6,000 rare diseases
March 1, 2023

Creating a Sanctuary
August 6, 2022

How to cope with juggling chronic illness and a busy schedule
January 17, 2024
Common Variable Immunodeficiency

What is immunoglobulin replacement therapy (Ig)?: My experience with starting Ig

November 6, 2023 / 1 Comment

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Aubrey

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Saving Lives: Why it’s important to donate plasma
April 26, 2023

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Reflecting on four years with Common Variable Immunodeficiency (CVID)
August 23, 2023
Chronic Illness

What is an invisible illness? Navigating conditions that can’t be seen

October 10, 2023 / 1 Comment

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Suffering from constant sinus infections? Here are 2 things that help alleviate my sinusitis symptoms.
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Life with chronic illness: How to feel confident in your own skin
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After experiencing extreme hair loss at 22, here’s how I grew my hair back.
December 6, 2022
Common Variable Immunodeficiency

IDF’s Walk for Primary Immunodeficiency – how to get involved!

September 11, 2023 / 2 Comments

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Reflecting on four years with Common Variable Immunodeficiency (CVID)
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CVID Symptoms: How do I live a “normal” life?
March 21, 2023

What are immunoglobulins? How they relate to CVID
July 2, 2023